DiGeorge Syndrome (Review and National Health Service Duty) Bill

A Bill to require the Secretary of State to conduct a review into DiGeorge (22q11 deletion) syndrome; to require the National Health Service to publish a strategy after the review is complete; and for connected purposes.

Originating House

House of Commons

Last Updated

16 October 2018

In Plain English

AI-generated

This bill would require the government to carry out a formal review of DiGeorge syndrome (22q11 deletion) in the UK and, after the review, require the NHS to publish a strategy based on its findings. It aims to improve awareness, diagnosis, treatments and support for people affected, and to guide NHS services accordingly.

Key Points

Requires the Secretary of State to conduct a formal UK-wide review of DiGeorge syndrome (22q11 deletion).
Requires the National Health Service to publish a strategy after the review is completed.
The review is expected to consider issues such as awareness, diagnosis, care pathways, treatment options, support for families and research needs.
The bill creates duties connected to implementing improvements in services for people with the condition.

Progress

The bill is at the second reading in the House of Commons, so it remains in the early stages of parliamentary consideration.

Who is affected?

People with DiGeorge syndrome (22q11 deletion)Families and carers of people with DiGeorge syndromeHealthcare professionals and NHS staff involved in diagnosis and careNHS and health service bodies responsible for delivering the strategyMedical researchers and patient advocacy groups focused on DiGeorge syndrome

Generated 21 February 2026

Updates & Documents

News (1)

News - DiGeorge Syndrome (Review and National Health Service Duty)

1 Jan 1970

Order for Second Reading on Friday 26 October, read and discharged. Bill withdrawn on Monday 15 October 2018.

Parliamentary Votes (0)

No recorded votes for this bill yet.

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