DiGeorge Syndrome (Review and National Health Service Duty) Bill

Key Points

• Requires the Secretary of State to conduct a formal review into DiGeorge syndrome (22q11 deletion syndrome).
• After the review, the NHS must publish a strategy outlining actions to improve care and services.
• Aims to address gaps in diagnosis, treatment pathways, support and data collection for people with DiGeorge syndrome.
• Establishes a duty for government and the NHS to implement the review's recommendations through the published strategy.
• Currently at the 2nd reading in the Commons; originated in the Commons; first reading occurred on 5 June 2018.

Progress

The bill is presently at the 2nd Reading stage in the Commons. It originated in the Commons and had its first reading in June 2018; no further stages are listed here.